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Understanding the Patient Experience in NUT Carcinoma: Qualitative Interviews with Patients and Caregivers to Develop a Conceptual Framework.

Farrah PompilusAnna CieslukPatrick MarquisIngolf GriebschMaarten Voorhaar
Published in: Oncology and therapy (2021)
This study describes the patient experience of NUTca and proposes an evidence-based CF that informs both the clinical community's understanding of the disease and selection of a patient-reported outcome (PRO) measure to assess treatment benefit in future NUTca trials.
Keyphrases
  • patient reported outcomes
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • healthcare
  • cystic fibrosis
  • mental health
  • palliative care
  • systematic review
  • replacement therapy