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A systematic approach to the disclosure of genomic findings in clinical practice and research: a proposed framework with colored matrix and decision-making pathways.

Kenji MatsuiKeiichiro YamamotoShimon TashiroTomohide Ibuki
Published in: BMC medical ethics (2021)
We analyzed the SDD of genomic findings and developed subsequent systematic decision-making pathways of whether and how to disclose genomic findings to patients/research subjects and their relatives in an ethical manner. Our comprehensive framework may help physicians and researchers in genomic medicine make consistent ethical judgments regarding the disclosure of genomic findings.
Keyphrases
  • decision making
  • copy number
  • end stage renal disease
  • clinical practice
  • chronic kidney disease
  • ejection fraction
  • peritoneal dialysis