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Subspecialty Health Care Utilization in Pediatric Patients With Muscular Dystrophy in the United States.

Susan E MatesanzJonathan B EdelsonKatherine A IacobellisErika MejiaJohn F BrandsemaCarol A Wittlieb-WeberOluwatimilehin OkunowoHeather M GriffisKimberly Yee Lin
Published in: Neurology. Clinical practice (2024)
The rate of annual neurology follow-up and corticosteroid use in patients with DBMD is low. Medicaid insurance status was independently associated with a decreased likelihood of neurology follow-up, while age was not, suggesting that factors other than disease severity influence neurology care access. Identifying barriers to regular follow-up is critical in improving outcomes for patients with DBMD.
Keyphrases
  • affordable care act
  • muscular dystrophy
  • healthcare
  • health insurance
  • palliative care
  • duchenne muscular dystrophy
  • quality improvement
  • type diabetes
  • pain management
  • insulin resistance