Subspecialty Health Care Utilization in Pediatric Patients With Muscular Dystrophy in the United States.
Susan E MatesanzJonathan B EdelsonKatherine A IacobellisErika MejiaJohn F BrandsemaCarol A Wittlieb-WeberOluwatimilehin OkunowoHeather M GriffisKimberly Yee LinPublished in: Neurology. Clinical practice (2024)
The rate of annual neurology follow-up and corticosteroid use in patients with DBMD is low. Medicaid insurance status was independently associated with a decreased likelihood of neurology follow-up, while age was not, suggesting that factors other than disease severity influence neurology care access. Identifying barriers to regular follow-up is critical in improving outcomes for patients with DBMD.