Exploration of caregiver experiences of reported first signs of Autism.

This study explored caregiver-reported first signs of Autism and caregiver experiences of reporting these signs to health professionals using a multiple methods approach. Phase one included secondary analysis of a survey of caregivers, while phase two consisted of focus groups of caregivers of children on the autism spectrum. Survey data indicated that most children were aged 12-18 months when first signs were noticed, with first signs noticed earlier in females than males. Children were age 2-6 years when caregivers sought advice and received a diagnosis. Uncertainty and a lack of information often left caregivers feeling frustrated and under-supported when seeking advice and diagnosis. Despite first signs being recognised early by caregivers, barriers to information and seeking help and support resulted in significant delays in receiving a diagnosis.