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Patients' views on HCC biospecimen research: Understanding the role of race and culture through interviews.

Patricia D JonesRyan C SchooleySophia HonStephanie M CastañedaHengameh ShamsDebbiesiu L Lee
Published in: Hepatology communications (2023)
Specific recommendations to increase the likelihood of donation include providing patients with educational materials addressing the benefits of donation and the concerns about confidentiality and data usage, making donation convenient, and adopting a broad consent bio-banking policy.
Keyphrases
  • end stage renal disease
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  • chronic kidney disease
  • newly diagnosed
  • healthcare
  • public health
  • peritoneal dialysis
  • prognostic factors
  • mental health
  • patient reported outcomes
  • deep learning