'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.
Katherine BristoweDebbie BraybrookHannah May ScottLucy CoombesDaney HarðardóttirAnna RoachClare Ellis-SmithMyra Bluebond-LangnerLorna Katherine FraserJulia DowningFliss E M MurtaghRichard HardingPublished in: Palliative medicine (2024)
Children and young people can provide rich descriptions of their condition. Paying attention to their lexical choices, and converging one's language towards theirs, may enable more child-centred discussions. Expanding discussions about 'what matters most' with consideration of the losses and differences they have experienced may facilitate a fuller assessment of their concerns, preferences and priorities.