The GOAL-Hēm journey: Shared decision making and patient-centred outcomes.
Jonathan C RobertsSharon RichardsonMoses E MilesJustin StanleyChere A T ChapmanMichael DenneJorge CaicedoKenneth RockwoodMichael RechtPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2022)
The GOAL-Hēm development journey may serve as a roadmap for other PCOMs in a variety of settings, including clinical studies, haemophilia treatment centres for care planning, and as a tool to gather real-world evidence.