Development and preliminary evaluation of the Neurofibromatosis Type 1 Adult Quality of Life (NF1-AdQoL) questionnaire.

H CrawfordK NorthM J WilsonY BermanV McKelvey-MartinPatrick John MorrisonJ FlemingBelinda Barton

Published in: Clinical and experimental dermatology (2021)

The NF1-AdQoL is a relatively valid, feasible and fairly easy to read tool to measure the HRQoL of adults with NF1. Further evaluation is required to determine the test-retest reliability, responsiveness and validity of the NF1-AdQoL in larger adult NF1 cohorts.

Keyphrases

signaling pathway
lps induced
pi k akt
nuclear factor
oxidative stress
inflammatory response
immune response