The psychosocial impact of haemophilia from patients' and caregivers' point of view: The results of an Italian survey.

Arianna FornariIppazio Cosimo AntonazzoAngiola RocinoDaniele PretiAnna FragomenoFrancesco CucuzzaNicola CeresiCristina Santoro Antonietta FerrettiRita FacchettiPaolo CozzolinoChiara BiasoliCristina CassoneAntonio Coppola Paolo Angelo CortesiLorenzo Giovanni Mantovani

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)

This study provides information about PwH's and CPwH's point of view in the current scenario of continuous innovations in haemophilia treatment and management furthermore, updated insights on psychosocial problems faced by patients and caregivers are reported.

Keyphrases

end stage renal disease
mental health
ejection fraction
newly diagnosed
chronic kidney disease
prognostic factors
social media
patient reported