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Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results.

Kyle Bertram BrothersKelly M EastWhitley V KelleyMartha Frances WrightMatthew J WestbrookCarla A RichKevin M BowlingEdward J LoseE Martina BebinShirley SimmonsJohn A MyersGreg BarshRichard M MyersGreg M CooperJill M PulleyMark A RothsteinEllen Wright Clayton
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2016)
Our novel instrument-PIGSR-should be useful in a wide variety of clinical and research settings.Genet Med 19 3, 337-344.
Keyphrases
  • patient reported outcomes
  • decision making
  • copy number