OMERACT systemic lupus erythematosus domain survey.
Wils NielsenVibeke StrandLee SimonEllie PinskerDennisse BonillaEric MorandJulian ThumbooMartin AringerMarta MoscaIan BruceIoannis ParodisAlfred KimMaya DesaiYvonne EnmanBeverley SheaDaniel J WallaceYashaar ChaichianSandra NavarraCynthia AranowMeggan MackayKimberly TrotterOshrat E Tayer-ShifmanAlí Duarte-GarcíaLai Shan TamManuel F Ugarte-GilGuillermo J Pons-EstelJohn A ReynoldsMandana NikpourAlberta HoiJuanita Romero-DiazAmita AggarwalChi Chiu MokKeishi FujioRosalind Ramsey-GoldmanDafna D GladmanLaurent ArnaudIrene E M BultinkGuillermo Ruiz-IrastorzaLuís Sousa InêsSimone AppenzellerChrisanna DobrowolskiAnn Elaine ClarkeDiane L KamenMichelle BarracloughChiara TaniJose A Gómez-PuertaVictoria P WerthPatti KatzBehdin Nowrouzi-KiaSindhu R JohnsonAaron M DruckerZahi Toumanull nullPublished in: Seminars in arthritis and rheumatism (2024)
The domain inclusion and importance results demonstrate that patients and collaborators prioritize different domains, so capturing the perspectives of both groups is essential to ensure a holistic assessment of SLE. The results of the study identify domains that already have a high level of agreement for potential inclusion in the SLE COS, domains that require further explanation, and novel domains that warrant consideration.