An Assessment of Perspectives and Concerns Among Research Participants of Childbearing Age Regarding the Health-Relatedness of Data, Online Data Privacy, and Donating Data to Researchers: Survey Study.

Rachele M Hendricks-Sturrup Christine Y Lu

Published in: Journal of medical Internet research (2023)

Our findings in light of Dobbs and other related events indicate there are opportunities to educate research participants about the health-relatedness of their digital data. Developing strategies and best privacy practices for discretion regarding digital-footprint data related to family planning should be a priority for companies, researchers, families, and other stakeholders.

Keyphrases

big data
electronic health record
healthcare
public health
machine learning
social media
risk assessment
data analysis
climate change
health promotion