Psychometric study of the SF-36v2 in hereditary angioedema due to C1 inhibitor deficiency (C1-INH-HAE).

Paola Palao-OcharanNieves PriorElisa Dieguez-CostaMagdalena Caminoanull nullTeresa Caballero

Published in: Orphanet journal of rare diseases (2022)

The psychometric properties of the SF-36v2 were evaluated in an international setting based on responses from 290 adult C1-INH-HAE patients in 11 countries.

Keyphrases

psychometric properties
ejection fraction
newly diagnosed
prognostic factors
patient reported outcomes
patient reported