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"If only I had", patients' experiences during early oncology trials.

Maaike E A van Sasse van IJsseltDiane A J van der BiessenAndrea J van PuffelenDebbie G J RobbrechtWendy H Oldenmenger
Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2023)
Participants felt they tried everything and that they were treated to the limit. This not only gives the motivation to continue participating but also a sense of altruism. Despite different burdens, side-effects, and the feeling of being a test subject, the participants will not easily choose to stop participation in order to prevent saying afterwards: "If only I had".
Keyphrases
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • mental health
  • physical activity
  • peritoneal dialysis
  • palliative care