Burden of adult neurofibromatosis 1 questionnaire: translation and psychometric properties of the Persian version.

Reza Jahanshahi Zahra Yasaghi Fatemeh Mirzaei Shohreh Ghasemi Akram Sanagoo Leila Jouybari Samira Foji

Published in: Orphanet journal of rare diseases (2023)

The Persian version of the BoN is an acceptable tool in terms of structure and content, and it specifically assesses the practical aspects of daily activities for patients with neurofibromatosis.

Keyphrases

psychometric properties
physical activity
risk factors
childhood cancer
young adults