Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis.

Sean White Alicia O'CathainVanessa HallidayLiz CrootChristopher J McDermott

Published in: Health expectations : an international journal of public participation in health care and health policy (2023)

The lead author collaborated with several patient and participant involvement (PPI) groups with regards to the conceptualisation and design of this project. Decisions that have been influenced by discussions with multiple PPI panels include widening the scope of decisions about ventilation in addition to gastrostomy placement and the perceptions of all stakeholders involved (i.e., pwMND, caregivers and HCPs).

Keyphrases

respiratory failure
protein protein
healthcare
ultrasound guided
mechanical ventilation
primary care
case report
acute respiratory distress syndrome