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Parenting through place-of-care disruptions: A qualitative study of parents' experiences of neonatal care.

Caroline CupitAlexis PatonElaine BoyleThillagavathie PillayJosie AndersonNatalie Armstrongnull null
Published in: Health expectations : an international journal of public participation in health care and health policy (2024)
The OPTI-PREM study embedded parents' experiences of neonatal care into the research, through a discrete workstream that employed qualitative methodology to capture parents' experiences-as reported in this paper. The OPTI-PREM project was also supported by a Bliss volunteer parent panel, which was involved in designing and overseeing the research. Bliss 'champion[s] the right for every baby born premature or sick to receive the best care by supporting families, campaigning for change and supporting professionals and enabling life-changing research' (https://www.bliss.org.uk/about-us/about-bliss). A representative of Bliss is a co-author of this manuscript, and a parent representative (named in the Acknowledgements) provided feedback during its preparation.
Keyphrases
  • quality improvement
  • healthcare
  • palliative care
  • mental health
  • pain management
  • affordable care act
  • chronic pain
  • low birth weight
  • mass spectrometry
  • gestational age