Physical symptom burden in patients with desmoid-type fibromatosis and its impact on health-related quality of life and healthcare use.
Anne-Rose W SchutLeanne E de BruinBelle H de RooijEmma K LidingtonMilea J M TimbergenWinette T A van der GraafWinan J van HoudtJohannes J BonenkampRobin L JonesDirk J van GrünhagenStefan SleijferSpyridon GennatasCornelis VerhoefOlga HussonPublished in: Cancer medicine (2023)
This study identified four distinct subgroups of DTF patients based on their level of symptom burden, with a considerable number of patients being highly symptomatic. Knowledge of the level of symptom burden DTF patients experience can help to identify patients at risk of poorer outcomes and tailor supportive care to the individual needs of DTF patients.