Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.
Nicole PetersVanina P M Dal Bello-HaasTara L PackhamMarvin ChumColleen O'ConnellWendy S JohnstonJoy C MacDermidJohn TurnbullJill Van DammeAyse KuspinarPublished in: Patient related outcome measures (2021)
The majority of GPBMs covered only approximately half of the domains important to individuals with ALS suggesting the need for an ALS specific preference-based measure to better reflect the health-related quality of life of this population.
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