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Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians' Views and Experiences.

Lauren NotiniClara L GaffJulian SavulescuDanya F Vears
Published in: AJOB empirical bioethics (2023)
Our findings, which are novel as they relate to parents of young infants with a recent diagnosis of hearing loss, add new insights into clinicians' and parents' decision-making regarding SF in pediatrics.
Keyphrases
  • hearing loss
  • decision making
  • palliative care
  • mental health
  • single cell
  • copy number
  • gene expression