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Giving patients a voice: a participatory evaluation of patient engagement in Newfoundland and Labrador Health Research.

Lidewij Eva VatMike WarrenSusan GooldEverard Bud DavidgeNicole PorterTjerk Jan Schuitmaker-WarnaarJacqueline E W BroerseHolly Etchegary
Published in: Research involvement and engagement (2020)
Our findings show that researchers, patient partners and students value patient engagement in health research. Capacity building at the supervisor level in academic institutions is needed to better support students. Sufficient time is also needed to permit observable outcomes. Participatory evaluation may increase the relevance and usefulness of information, but it also raises issues such as who defines and designs the content of evaluation tools. A co-creation process is required to develop appropriate monitoring and evaluation strategies.
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