Lessons learned from community engagement regarding phylodynamic research with molecular HIV surveillance data.
Diana M TordoffBrian MinalgaAlfredo TrejoAlic ShookRoxanne P KeraniJoshua T HerbeckPublished in: Journal of the International AIDS Society (2023)
HIV phylogenetics research using data collected through MHS data is a powerful scientific technology with the potential to benefit and harm communities of people living with HIV. Addressing criminalization and including people living with HIV in decision-making processes have the potential to meaningfully address community concerns and strengthen the ethical justification for using MHS data in both research and public health practice. We close with specific opportunities for action and advocacy by researchers.
Keyphrases
- public health
- electronic health record
- healthcare
- decision making
- antiretroviral therapy
- big data
- hiv infected
- human immunodeficiency virus
- hiv positive
- hepatitis c virus
- mental health
- hiv aids
- primary care
- hiv testing
- data analysis
- machine learning
- social media
- south africa
- risk assessment
- quality improvement
- climate change