"I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome.

Rowan Forbes Shepherd Allison Werner-Lin Louise Anne Keogh Martin B Delatycki Laura Elenor Forrest

Published in: Journal of psychosocial oncology (2020)

AYAs undergoing genetic testing for LFS have unique support needs based on their life stage and require developmentally appropriate psychosocial care.

Keyphrases

young adults
mental health
healthcare
childhood cancer
palliative care
quality improvement
case report
middle aged
pain management
ion batteries
affordable care act