Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients.
Lorenzo MontaliEdoardo ZulatoAlessandra FrigerioElisa FrangiElisabetta CamussiPublished in: Journal of community psychology (2021)
Breast cancer patients are primary users of Internet Health Forums, virtual self-help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi-structured email interviews with breast cancer patients recruited within a well-established online community. Thematic analysis identified five processes-mirroring, monitoring, modelling, belonging, and distancing-that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems.
Keyphrases
- mental health
- healthcare
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- physical activity
- health information
- prognostic factors
- systematic review
- peritoneal dialysis
- primary care
- type diabetes
- adipose tissue
- social media
- risk assessment
- mass spectrometry
- patient reported outcomes
- young adults
- skeletal muscle
- quality improvement