Last year of life of adults with congenital heart diseases: causes of death and patterns of care.
Liesbet Van BulckEva GoossensLucas MorinKoen LuyckxFouke OmbeletRuben WillemsWerner BudtsKatya De GrooteJulie De BackerLieven AnnemansStéphane MoniotteMichèle de HossonArianne MarelliPhilip Moonsnull nullPublished in: European heart journal (2022)
There is a high use of intensive and potentially avoidable care at the end of life. This may imply that end-of-life care provision can be improved. Future studies should further examine end-of-life care provision in the light of patient's needs and preferences, and how the healthcare system can adequately respond.