LONG TERM MANAGEMENT OF GLYCOGEN STORAGE DISEASE TYPE 1B: A BRAZILIAN TERTIARY CENTER EXPERIENCE.

Marina Mayumi Vendrame Takao Natascha Silva Sandy Adriana Gut Lopes Riccetto Adriana Maria Alves de Tommaso

Published in: Arquivos de gastroenterologia (2021)

Managing GSD 1b is challenging not only for the chronic and multisystemic nature of this disease, but also for the additional demands related dietary restrictions, use of multiple medications and the need for frequent follow-up visits; furthermore in Brazil, the difficulties are increased in a scenario where we frequently care for patients with unfavorable socioeconomic status and with irregular supply of medications in the public health system.

Keyphrases

healthcare
palliative care
mental health
emergency department
pain management