Assessing the impacts of having a child with achondroplasia on parent well-being.
Kathryn M PfeifferMeryl BrodAlden SmithJill GianettoniDorthe ViuffSho OtaR Will CharltonPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
The results improve our understanding of the experiences of parents of children with achondroplasia and provide qualitative evidence to support the content validity of the APEM. A psychometric study is needed to validate the measure.