Reducing complexity: explaining inborn errors of metabolism and their treatment to children and adolescents.

Nina A ZeltnerMendy M Welsink-KarssiesMarkus A LandoltDominique Bosshard-BullingerFabia KellerAnnet M BoschMarike GroenendijkSarah C GrünertDaniela KarallBeatrix RettenbacherSabine Scholl-BürgiMatthias R BaumgartnerMartina Huemer

Published in: Orphanet journal of rare diseases (2019)

The newly developed patient education materials are a powerful tool to improve disease- and treatment-related knowledge. They facilitate communication between the medical team and children and adolescents with IEM and their caregivers.

Keyphrases

healthcare
palliative care
quality improvement
case report
patient safety
combination therapy