Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions.
Xiaoping LinKasey WallisSusannah AhernHenry BrodatyChristopher RoweBarbara KainSally LambourneJohn McNeilStephanie A WardPublished in: Internal medicine journal (2021)
Clinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt-out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision-making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.