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Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions.

Xiaoping LinKasey WallisSusannah AhernHenry BrodatyChristopher RoweBarbara KainSally LambourneJohn McNeilStephanie A Ward
Published in: Internal medicine journal (2021)
Clinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt-out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision-making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.
Keyphrases
  • mild cognitive impairment
  • cognitive decline
  • cognitive impairment
  • healthcare
  • quality improvement
  • decision making
  • physical activity
  • electronic health record
  • machine learning
  • deep learning