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Getting Wheels: development and evaluation of a psychoeducational resource for parents of children with a neuromuscular condition following recommendation of wheelchair equipment.

Sarah-Grace PaguintoNadine A KasparianKate CarrollNicole ThomasPaula BrayMichelle A Farrar
Published in: Disability and rehabilitation. Assistive technology (2024)
" booklet provides tailored information for use in the context of wheelchair recommendation for children with a neuromuscular condition.The emotions elicited throughout wheelchair prescription endorse the need for integrated psychosocial multidisciplinary care to improve access and support the ongoing emotional needs of this population.Parents of children who receive wheelchair recommendation between zero and two years require greater support from clinicians regarding their thoughts and feelings about wheelchair prescription.Parents of children with a neuromuscular condition and treating clinicians support provision of a tailored psychoeducational resource when a child is recommended a wheelchair.
Keyphrases
  • young adults
  • palliative care
  • healthcare
  • mental health