Health-related quality of life in children and adolescents with pleuropulmonary blastoma: A report from the International PPB/DICER1 Registry.

Alexander T NelsonAnna DybvikPaige MallingerShelly Weiss McQuaidDavid WatsonLaura A HarneyDouglas R StewartLouis P DehnerYoav H MessingerAlicia S Kunin-BatsonKris Ann P Schultz

Published in: Pediatric blood & cancer (2022)

These data demonstrate the importance of regular HRQoL assessment in patients with a history of PPB as well as the importance and feasibility of studying HRQoL in children with rare tumors.

Keyphrases

young adults
electronic health record
big data
data analysis