The Diagnostic Journey of Childhood Idiopathic Nephrotic Syndrome: Perspectives of Children and Their Caregivers.

Augustina OkpereSusan SamuelKathryn King-ShierLorraine HamiwkaMeghan J Elliott

Published in: Canadian journal of kidney health and disease (2022)

In characterizing the diagnostic experiences of children and their caregivers, our study provides insight into how patients with nephrotic syndrome and their caregivers can be supported by the healthcare team along this journey. Focused strategies to increase awareness and understanding of nephrotic syndrome among healthcare providers are needed to improve patients' and families' diagnostic experiences.

Keyphrases

healthcare
palliative care
end stage renal disease
young adults
mental health
chronic kidney disease
ejection fraction
newly diagnosed
social media
childhood cancer
patient reported