Building a haemophilia-specific navigator in Epic® Electronic Health Records: Single-centre preliminary experience.
Evelien KrumbNicolas VanlangendonckCatherine Marie LambertSébastien LobetAn Van DammeCedric HermansPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Adapting EHRs to the needs of PwH and carriers promotes holistic care for this population and provides an opportunity for patient empowerment. Such haemophilia-specific EHRs are expected to promote standardisation of care and facilitate the collection of registry data on a national and international level.