The reported impact of public involvement in biobanks: A scoping review.
Lidia Luna PuertaWill KendallBethan DaviesSophie DayHelen WardPublished in: Health expectations : an international journal of public participation in health care and health policy (2020)
Functional approaches to public involvement in biobanking limit impact. This conceptualization of involvement emerges from an entrenched technical understanding that ignores its political nature, complicated by long-standing disagreement about the values of public involvement. This study urges a re-imagination of impact, re-conceptualized as a two-way learning process. More support will help researchers and members of the public to undergo such reflective exercises.