Life expectancy and end-of-life communication in adult patients with congenital heart disease, 40-53 years after surgery.
Chiara PelosiRobert M KaulingJudith A A E CuypersElisabeth M W J UtensAnnemien E van den BoschAgnes van der HeideJeroen S LegersteeJolien W Roos-HesselinkPublished in: European heart journal open (2023)
Adult patients, especially with moderate/severe CHD, perceived their life expectancy as normal, whereas cardiologists had a more pessimistic view than their patients. Increased attention is warranted for discussions on life expectancy and EOL to improve patient-tailored care.
Keyphrases
- congenital heart disease
- end stage renal disease
- minimally invasive
- healthcare
- chronic kidney disease
- newly diagnosed
- palliative care
- depressive symptoms
- working memory
- prognostic factors
- mental health
- case report
- coronary artery bypass
- patient reported outcomes
- coronary artery disease
- chronic pain
- acute coronary syndrome
- patient reported