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Child and Adult Factors Related to Quality of Life in Adults with Autism.

Philippa MossWilliam MandyPatricia Howlin
Published in: Journal of autism and developmental disorders (2018)
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were low. Informant ratings indicated few correlations between current QoL and any child or adult factors. On self-report ratings, QoL was significantly negatively correlated with severity of repetitive behaviours in childhood; higher QoL was positively associated with better adult social outcomes. However, only a minority of adults (n = 22) could provide self-report data and findings highlight the need to develop valid measures for assessing the well-being of adults with autism.
Keyphrases
  • mental health
  • autism spectrum disorder
  • childhood cancer
  • intellectual disability
  • healthcare
  • early life
  • high frequency
  • emergency department
  • skeletal muscle
  • weight loss
  • deep learning
  • patient reported