Clinical management of pediatric patients with cystic fibrosis and autism spectrum disorder.
Kimberly PasleyKatelyn KrivcheniaMary Lynn DellKaren S McCoyGrace R PaulPublished in: Pediatric pulmonology (2023)
Children with CF-ASD face extraordinary challenges beyond the experience of neurotypical children with CF. Increased awareness of this complex dual diagnosis will help providers be sensitive to the unique needs of these patients, help build consistent and trustworthy relationships with their families and deliver effective clinical care despite limitations. This article is protected by copyright. All rights reserved.
Keyphrases
- autism spectrum disorder
- cystic fibrosis
- end stage renal disease
- young adults
- healthcare
- ejection fraction
- newly diagnosed
- attention deficit hyperactivity disorder
- intellectual disability
- chronic kidney disease
- palliative care
- prognostic factors
- peritoneal dialysis
- quality improvement
- patient reported outcomes
- pain management
- health insurance
- patient reported