Implementation of thyroid eye disease registry in Iran: rationale and research protocol.
Shadi AkbarianAbbas SheikhtaheriFarid KhorramiHossein GhahvechianNasser KarimiMohsen Bahmani KashkouliPublished in: Orphanet journal of rare diseases (2024)
Iran's TED registry provides practitioners with comprehensive data on natural history and phenotype variations in clinical features and outcomes. It facilitates patient recruitment and, consequently, earlier diagnosis on a large scale which helps improve treatment and quality of life for patients.
Keyphrases
- end stage renal disease
- primary care
- ejection fraction
- newly diagnosed
- healthcare
- chronic kidney disease
- clinical trial
- prognostic factors
- peritoneal dialysis
- case report
- adipose tissue
- quality improvement
- big data
- metabolic syndrome
- insulin resistance
- skeletal muscle
- replacement therapy
- artificial intelligence
- smoking cessation