Lack of awareness of systemic lupus erythematosus and its consequences in a cohort of moderate and severe patients in Spain: The LupusVoice study.

Maria Galindo IzquierdoJoaquín Borrás BlascoSilvia Pérez OrtegaTarek Carlos Salman Monte Paloma Vela-CasasempereEsther Rodríguez AlmarazJaime Calvo AlénJosé María Álvaro-Gracia ÁlvaroM Julia Barbado Ajo Raül Rubio Marta Galvez-Fernandez Noemí Bahamontes-Rosa Joaquín Sánchez-Covisa Hernández Carlota Solà Marsiñach

Published in: Lupus (2024)

This study highlights the need to increase SLE awareness among patients, HCPs, and the broader public in order to improve patient QoL. Being aware of the clinical and emotional impact of such lack of awareness, as well as the role played by context on the patient experience of SLE, is a crucial step towards achieving this goal.

Keyphrases

systemic lupus erythematosus
disease activity
healthcare
end stage renal disease
ejection fraction
rheumatoid arthritis
early onset
prognostic factors
high intensity