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'The current mental health status of children and young people with JIA, and their wider family': a charity partner collaboration survey.

Polly LivermoreS AinsworthR BeesleyS DouglasE EarleD WilsonL WoolleyJ Clinch
Published in: Pediatric rheumatology online journal (2023)
Children and young people with JIA have significant mental health sequelae from their diagnosis. Our findings found that nearly 60% of our respondents have had or are requiring mental health support, with significant numbers of parents/carers reporting difficulties in accessing care for their child's mental health or their own mental health, due to their child's diagnosis. This unique collaborative charity-led study, illustrates the importance of timely and accessible mental health support. Further work is needed to understand why best practice guidance for mental health support is not being met consistently and to identify how to embed it into standard rheumatology care.
Keyphrases
  • mental health
  • mental illness
  • healthcare
  • quality improvement
  • palliative care
  • young adults
  • primary care
  • juvenile idiopathic arthritis
  • systemic lupus erythematosus
  • electronic health record
  • drug induced
  • hiv testing