Stakeholder Development of an Online Program to Track Arthritis-Related Patient-Reported Outcomes Longitudinally: Live Yes! INSIGHTS.

Karen E SchifferdeckerRebecca L ButcherErin KnightEmily CreekM Suzanne SchrandtLaura MarrowMarie JaffeArlene VinciGuy Eakin

Published in: ACR open rheumatology (2020)

An accessible measurement system backed by psychometrically strong PROMs, created with robust stakeholder engagement, and linked to a national patient network sets the stage for individuals with arthritis to better monitor and improve health outcomes both outside and inside health care settings and for the network to customize programming to meet needs.

Keyphrases

patient reported outcomes
quality improvement
healthcare
rheumatoid arthritis
case report
social media
network analysis
health information
drug induced