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Treatment adherence in tyrosinemia type 1 patients.

Domingo González-LamuñoPaula Sánchez-PintosFernando AndradeMaria-Luz CouceLuís Aldámiz-Echevarría
Published in: Orphanet journal of rare diseases (2021)
Despite initially poor adherence to pharmacological and especially dietary treatment among HT1 patients, positive reinforcement at medical consultations resulted in a marked improvement in NTBC levels, indicating the importance of systematic positive reinforcement at medical visits.
Keyphrases
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • healthcare
  • peritoneal dialysis
  • prognostic factors
  • type diabetes
  • adipose tissue
  • patient reported outcomes
  • general practice