Introducing patient-reported outcome in the acute leukemia quality registries in Sweden.

Emma Bergfelt LennmyrKarin KarlssonMarie AbrahamssonFereshte EbrahimAnna LübkingMartin HöglundGunnar JuliussonHeléne Hallböök

Published in: European journal of haematology (2020)

PRO collected in a registry-based setting is feasible, but the selection of time points and questionnaires are delicate in a diverse patient population.

Keyphrases

patient reported outcomes
case report
anti inflammatory
psychometric properties
quality improvement