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Navigating two 'truths': a qualitative study of physician-led end-of-life decision-making for children with life-limiting conditions.

Sidharth VemuriJenny HynsonKatrina WilliamsLynn Gillam
Published in: Archives of disease in childhood (2023)
Paediatricians feel responsible for facilitating the alignment of parental understanding of the child's health status with their own. This is achieved either through direction or by holding differences between parental and medical truths about the child's health in tension to provide time, space, and clarity. This alignment was seen as key to enabling end-of-life treatment decisions, without which conflict in end-of-life decision-making can arise or persist.
Keyphrases
  • decision making
  • mental health
  • healthcare
  • public health
  • primary care
  • emergency department
  • young adults
  • human health
  • social media