Family communication and patient distress after germline genetic testing in individuals with pancreatic ductal adenocarcinoma.
Mary Linton B PetersLindsey StobieBeth DudleyEve KarloskiKyle AllenVirginia SpeareJill S DolinskyYuan TianKim DeLeonardisJill KrejdovskyArlene ButtonCynthia LimErkut BorazanciRandall BrandNadine TungPublished in: Cancer (2019)
The rate of result communication was high, although it was lower among patients who did not meet genetic testing criteria, those who tested negative, or those who had a VUS result. Testing-associated distress was similar across patient groups, and was comparable to that reported by other patients with cancer. Improved communication for all patients is crucial given the prognosis of PDAC, which limits time for disclosure.