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Patient Experiences and Challenges in the Management of Autoinflammatory Diseases-Data from the International FMF & AID Global Association Survey.

Juergen RechGeorg SchettAbdurrahman TufanJasmin B Kuemmerle-DeschnerSeher SenerKoray TascilarLeonie GeckTobias KrickauEllen CohenTatjana WelzelMarcus KuehnMalena Vetterli
Published in: Journal of clinical medicine (2024)
AID patients, particularly adults, suffer from significant delays in diagnosis, misdiagnosis, and a variety of symptoms, including pain and fatigue. Based on the results presented, raising awareness of these diseases in the wider medical community is crucial to improving patient care and quality of life.
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