Impact of Covid-19 on clinical care and lived experience of systemic sclerosis: An international survey from EURORDIS-Rare Diseases Europe.

Michael Hughes John D PaulingAndrew MooreJennifer Jones

Published in: Journal of scleroderma and related disorders (2021)

Covid-19 has resulted in significant impact on the clinical-care and emotional well-being of systemic sclerosis patients. Changes to clinical care delivery have been well-received by patients including telemedicine consultations.

Keyphrases

systemic sclerosis
end stage renal disease
interstitial lung disease
healthcare
coronavirus disease
newly diagnosed
ejection fraction
chronic kidney disease
sars cov
palliative care
prognostic factors
quality improvement
peritoneal dialysis
pain management
chronic pain
respiratory syndrome coronavirus