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Caregivers' experience of sleep management in Smith-Magenis syndrome: a mixed-methods study.

Georgie AgarStacey BissellLucy WildeNigel OverCaitlin WilliamsCaroline RichardsChris Oliver
Published in: Orphanet journal of rare diseases (2022)
Caregivers' priorities for sleep management and support were delineated, with key implications for services in terms of the use of SMS-sensitive strategies and respite provision.
Keyphrases
  • palliative care
  • physical activity
  • healthcare
  • sleep quality
  • mental health
  • case report
  • health insurance