Caregivers' experience of sleep management in Smith-Magenis syndrome: a mixed-methods study.
Georgie AgarStacey BissellLucy WildeNigel OverCaitlin WilliamsCaroline RichardsChris OliverPublished in: Orphanet journal of rare diseases (2022)
Caregivers' priorities for sleep management and support were delineated, with key implications for services in terms of the use of SMS-sensitive strategies and respite provision.