Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD).
Noelle E CarlozziNicholas R BoileauMatthew W RochéRebecca E ReadyJoel S PerlmutterKelvin L ChouStacey K BartonMichael K McCormackJulie C StoutDavid CellaJennifer A MinerJane S PaulsenPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
The Neuro-QoL and PROMIS mental health PROs demonstrated strong psychometric reliability, as well as responsiveness to self-reported and clinician-rated change over time in people with HD.