Identifying performance-based outcome measures of physical function in people with haemophilia (IPOP).

Melanie BladenHannah HarbidgeWendy DrechslerGaetan DuportRyan MahaffeyJanjap van der NetSofía Pérez-Alenda Fionnuala Sayers Karen Strike Merel A Timmer David Stephensen

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)

This study is the first step in defining a core set of performance-based instruments to monitor physical health and sustainability of physical function outcomes in people with haemophilia. Establishing the psychometric properties of the instruments and whether they are meaningful to people with haemophilia is essential.

Keyphrases

psychometric properties
mental health
public health
healthcare
metabolic syndrome
climate change
risk assessment
social media
life cycle